Monday, April 18, 2016

Ignorance And Anticipation

It's said that time flies when you're having fun. Life has been a blur - yet at the same time I couldn't explain exactly what has been keeping us so busy. It's that strange phenomenon where you're exhausted yet you have nothing to show for why. Maybe we're just having too much fun. Time sure has flown by ...

I've done a lot of "mommy blogging" with some articles appearing on Scary Mommy. I'm excited to share some of my real-life adventures and humor. And am thrilled to share my story about Ryan. Sharing our positive outlook and adventure is a great way to educate some and also to bring positive attention to little people. I'm tired of dwarfism being the butt of endless jokes. Despite the fact that society has deemed it wrong to poke fun of people with disabilities, little people aren't part of the excused categories and are therefore often ridiculed in countless ways - pointing, pictures, jokes, name-calling, etc. 

For the past four years I've been happily living in my blissful ignorance. Perhaps I'm clueless. Or perhaps I'm successfully not noticing people and behavior that I have zero interest in. Unfortunately the reality still exists. And I'm reminded of this more and more. I'd like to say that my mindset is what keeps me on keel. But regardless of 'the how', I'm content and so is Ryan. We're not letting others affect our outlook on HIS life. Well, we're doing our best. It's a struggle sometimes. There's always the unknown. The anticipation of the future. What and who will it hold? It's there that the fear can creep into our lives. 

Life is what you make it right? And we've made it a great Winter and Spring. It's heating up in AZ so I'm already planning our Summer and bracing for the unrelenting heat. Keeping two kids under the age of five indoors for the majority of the day is incredibly difficult. I'm planning on utilizing friendships, crayons, stickers, books, splash pads, cookies, summer movies and wine to get us through. Not in that order and not all at the same time. :) 

Meanwhile, here's a taste of what we have been up to. 

NASCAR came to visit our local grocery store! Ryan has a new favorite driver ... although he's still a big fan of Rico Abreu and "the m&m car" (of course!)




A little football fun at the NASCAR event ... 




A very cute swim lesson duo!



Happy St. Patrick's Day!



Pizza making party with friends ... 
Ryan had a great time despite the fact that he doesn't care for pizza ... 





All smiles for a special lunch out with daddy!



Easter eggs!




Easter egg hunt and family fun ...







Along with all of this fun, I've also had the task of scheduling Ryan's next follow-up with his Genetic Doctor. In addition to seeing him, we have an MRI scheduled. Achondroplasia requires constant monitoring for various conditions including hydrocephalus and spinal compression. The last MRI Ryan had was when he was 4 months old. And here we go again. At four months old he looked fantastic and that's likely the case again this time. But it's still an unknown with possible complications to be found. In addition to the fears that lurk, an MRI on a child is not trivial. Ryan will have to go under general anesthesia. For anyone there is risk involved and for a little person it's even more so. His appointment is in the Summer. So in the meantime we will aim for ignorance and enjoy what we know today. 

And clearly today Ryan is a happy guy ...




... on to the next adventure.


















  

2 comments:

  1. Good to see this impressive differences within these sharing of snaps and other memorable things towards your details of post. Thanks a lot for the sharing.

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